#RareDiseaseDay – Who Knew?

Today is #RareDiseaseDay. Who knew? I do now. In case you're keeping count we have 2 in our immediate family #LongQT2 and #SynovialSarcoma. The medical field has only been aware of Long QT2 (a heart condition that causes sudden death - Sabrinna​, Gavin and I have it) for about 50 years. Want to know more [...]

Blah, It’s Valentine’s

It's Friday!  Hallelujah!  Trent's been in Brackenridge for Round 5 this whole week, but will be home tomorrow - maybe!  Just in time for Valentine's Day - the world's dumbest holiday.  I spent my day sitting in a classroom full of Mylar, rustley tissue paper and knock-off Victoria's Secret perfume. This round, just like every [...]